The New Palace Project Shout Out Chat Room

8/04/2008

WWE, Saturday Night's Main Event, Autism, & one parent's stressful reaction to the WWE "telethon"

I know I said I was going to do a podcast, but time did not permit me. I want to talk briefly about WWE's version of a telethon with wrestling matches.

Call me very cynical, pessimistic and whatever you want, but this looked awfully phony to me. Not because of the fact that WWE wanted to draw in viewers by using the charity to bring in celebs like the gamut that was drawn this past week, but the fact that it came out of absolutely nowhere. I mean, think about it, could Jenny McCarthy tell you the slightest thing about WWE before they begun this partnership?

And now, she's out there babbling about being excited to be out in front of the WWE fan nation. I mean, come on, put something out there that fits the demographic of the wrestling fan, because when I look at Jenny McCarthy, I don't think "pro wrestling."

But, I guess for me, it's a little more closer to home. While I respect the work that McCarthy is doing for this "Generation Rescue" charity to fight autism, it makes other families that deal with illnesses that, believe it or not, could be as serious if not more serious than autism, and how these illnesses are not recognized by the general public because either A) they're not widespread, or B) they're not the hip and happening cause of the moment.

And yes, my whole rant here has a personal touch. My son Jonathan has hydrocephalus. A condition, in lamen's terms, that basically causes the spinal fluid that flows through your brain to pool because of conditions I don't understand. Once that fluid pools, the brain swells, and you have a headache that makes an anvil dropping on your head looking like a day at the beach.

Now, my son has been dealing with this since day 4 of his life, and since that time, we've done our research, and there is minimal, and I mean minimal exposure for this condition. Why? Because it's not marketable. Neurosurgeries aren't marketable. It's really pathetic.

I'm not sitting here trying to disparage anybody who deals with the autism condition.

I know zero about it, so I can't comment, even if I wanted to.

I'm just basically a parent of a child who has a severe brain condition who would like to see the world recognize that his quality of life has been severely diminished due to this condition, and maybe, just maybe, some recognition and understanding can be made about this condition to try and avoid from anyone else having to suffer like my son does, or like good friends of mine who do who also are afflicted with this condition, or having what's called a VP shunt.

A VP shunt is a tube inserted in to the body neurosurgically to handle the drainage problems when the fluid in your brain does not drain properly on its own.

It's also only fixed neurosurgically when it clogs, pinches, or has any sort of infection. So, kids with hydro or shunts are subjected to multiple, and I mean more than multiple surgeries. So far, to this date, Jonathan has had 40. And he's only 9.

Autism isn't the only disability. There are others. A lot of others. And it'd be nice for the general public to recognize that. I know it's a pipe dream, but its something I needed to say.

3 comments:

Anonymous said...

Wah Wah Wah... Boo Hoo Hoo....

Oh they aren't raising money for your kid's condition

Give me a freakin' break

Is it tragic, yeah, but crying about how they are not giving it the time of day is not gonna do anything about.

Besides, the numbers makes sense, help Thousands of people or help hundreads. I'd help Thousands every time since it's the greater number.

Anonymous said...

What that guy said is true, you do have a 'what about my kid's condition' attitude when you crying about the WWE doing something great in conjuction with Jenny McCarthy and Generation Rescue. Sure your kid's promblem is sad, but you, yourself, made the point to blast the WWE, McCarthy and Generation Rescue to promote your kid's condition. You yourself are just as wrong as the critism your received. You have no one to blame but yourself, and do keep in mind, that not everything in your life belongs on the internet.

KING JB said...

well, let me say this...this is THIS MAN's BLOG and he has the right to post anythang that he wants to post on this site. To all tha succaz out there that choose to criticize his criticism of SNME, i admit that you have the right. Howeva, you are WRONG when you make the comment so personal. Sometimes you just need to shrug your shoulders and say "damn, thats a sad story" and move on. Mike, Im sorry to hear your story, but I do admit that I dont think that ANY FORM of public awareness program should ever take place during the SNME.